Manny Updates‎ > ‎

One Small Voice, A different course

posted Jun 12, 2012, 3:12 PM by Manny Wilke   [ updated Jun 13, 2012, 5:30 AM ]
MannyMan "graduated" from Good Shepherd Lutheran Pre-school a couple of weeks ago. At the ceremony, I was quite surprised to read that he and his buddy, Mason, were singing the only duet called "One Small Voice". (It was supposed to be a surprise). I video taped it and have replayed it over and over! Tears came to my eyes watching him sing...and re-watching him sing....and listening to the lyrics. The song is beautiful and his voice is so innocent and sweet. He has grown up so much in the past 2 years. Speech, Writing, Cutting! No ears, 1 ear, 2 ears! We are so lucky to have Mrs. Steinberg (pre-school), Mrs. Rabata (pre-school), Mary Kahler (hearing therapist), Colleen Foster (speech therapist) and Brenda Kiesow (school audiologist) to watch over him at school, make sure he is progressing properly, while helping our family transition in and out of surgeries. Thank you so much!! Next stop, Kindergarten!
Prior to the April surgery, I decided to commit to a 13 week training program to run the Madison 1/2 marathon at the end of May. I made sure to get in my runs and workouts while in California, which was a challenge in itself. I had been eagerly anticipating the race, running through my alma mater, and had somehow tied it to part of the California surgery process - it was something - the only thing -  I could control, motivation to keep going, a goal to reach, a distraction. So, when I got the flu the night before the race, I was devastated....not just about the training, but about the whole situation just not working out exactly as planned. While I've come to terms with not being able to control Manny's health, I surely could control mine. It took me a solid (actually, liquid) 2 weeks to work out the bug. This past weekend, I then received an insurance denial for the upcoming surgery and a letter stating our housing situation for the next surgery fell through.  So, on Sunday I had enough adrenoline pumping from this frustration to conquer 13.1 miles, just around Beaver Dam. It was my way of saying - I prepared, I did it anyway, I just finished a different course - one less traveled, but it feels great. No different than Manny's surgeries. We prepared, we did it anyway, we just finished a different course - one less traveled. And when he smiles with those Two Big Boy Ears, and says in his One Small Voice, "Mommy....I love you," it feels great!